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Write Your Rights

Countries

Bangladesh, Congo (DRC), India, Indonesia, Kenya, Madagascar, Mozambique, Rwanda, Uganda

Region

Africa

Programme Summary

Write Your Rights is a community empowerment campaign that invites the public to participate in the 'open-source' drafting of an international public health document, the Patients Charter of the Tuberculosis (TB) Community. The charter contains a blend of values, principles, and aspirations that are widely shared by people infected or affected by TB and TB-HIV worldwide.

Communication Strategies

The project organisers hope the campaign will be an open and participatory consultation process combining face-to-face meetings with use of online resources to publish, edit, and promote both the process and the substance of the document as a rights-based charter for people infected or affected by TB and TB-HIV. A series of consultation meetings and forums will be held in diverse regions of the world, from Lima to Lusaka, Dacca to Dakar, encouraging the participation of individuals and organisations on the ground and online. Click here to access a draft of the document and the opportunity to comment.

As of late 2009, the "Rights & Responsibilities Workshop Roadshow 2009", described as "live and direct outreach for input on HIV and TB", is taking place September-November through public meetings in the following locations: Kinshasa, Democratic Republic of the Congo; New Delhi, India; Jakarta, Indonesia; Nairobi, Kenya; Maputo, Mozambique; Kampala, Uganda; Kigali, Rwanda; Dhaka, Bangladesh; and Antananarivo, Madagascar. Sponsored by the World Care Council, its website invites input on the organisation of the tour, as well as on the document.

With the support of the American Thoracic Society, a 6-month input process brought forth two drafts and culminated with the joint launch of the Patients Charter of the Tuberculosis Community and the international standards of TB care in March 2006. The World Care Council is leading the initiative in 2009 and sponsoring the organisation of the "Roadshow".

The documents serve to foster 'partnerships', bringing patients and professionals together to contribute to the global fight against tuberculosis through implementation of these practices in local communities.

Development Issues

Health.

Key Points

The charter seeks to inspire a new sense of participation and 'stakeholding', interdependence, and shared responsibility for the well-being of the TB community. It hopes to be the standard of the rights and responsibilities for and by those living with the disease.

"Over two million members of the TB community die each year - avoidable deaths from a curable disease. TB accounts for up to a third of global AIDS deaths. For over a hundred years, people with TB have not had any voice in the provision of care that their lives, and the lives of those around them, have depended on.

The charter is a declaration of fundamental principles for building an equitable, sustainable, and effective system of 'patient-centered' care, from the perspective of those in need, in tandem with the new International Standards of Tuberculosis Care."

Partners

World Care Council. Click here for a list of additional partners.

Source

TBTV website on July 25 2005; and World Care Council website on September 30 2009 and October 21 2009.


Placed on the Communication Initiative site July 25 2005
Last Updated October 21 2009



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